Gretta worked a full day today and was swinging by the hospital to pick up Conan when I talked to her earlier.
He is having a little trouble walking, so the physical therapist that put him through his paces suggested using a cane for a few days. Gretta thinks he may still be getting more meds than he needs, but they have a regular checkup at UIHC on Tuesday, so they will bring all the notes and test from Rock Island with them.
I am repeating myself, but things looked so bleak on Tuesday, so for a person's brain to be so attacked and then recover is amazing.
Saturday, October 27, 2012
Thursday, October 25, 2012
Feeling Good!
Conan says he feels as good as any other day.
He's a little loopy as they test medication doses and effectiveness, and he will be in the hospital while they decide on the right mix, but for the most part he is back to his old self.
He remembers very little of what happened Tuesday, but we are assuming that because of the trauma his brain has already sustained through 2 surgeries and his 2008 radiation, the fever triggered a seizure.
I didn't expect an outcome this good when mom told me they had called an ambulance to take him to the hospital -- thank you all for your prayers and messages of hope and encouragement!
He remembers very little of what happened Tuesday, but we are assuming that because of the trauma his brain has already sustained through 2 surgeries and his 2008 radiation, the fever triggered a seizure.
I didn't expect an outcome this good when mom told me they had called an ambulance to take him to the hospital -- thank you all for your prayers and messages of hope and encouragement!
Awake & Eating
I still have a lot of questions, but it looks like Conan's condition is improving. It appears he was having some seizures on both sides of his brain, perhaps initiated by the fever. He will begin taking some extended release seizure medication and hopefully his condition will stabilize.
I'm not sure how long he will remain hospitalized, but they are moving him out of ICU and into a room.
I'm not sure how long he will remain hospitalized, but they are moving him out of ICU and into a room.
Wednesday, October 24, 2012
Still No Answers
MRI was done around 4 this afternoon, but it didn't shed any new light on the situation.
Good news is temperature seems to be under control. (Looks like I forgot to mention that earlier, but he was running a fever of around 102 and it wasn't responding to attempts to reduce it.)
Good news is temperature seems to be under control. (Looks like I forgot to mention that earlier, but he was running a fever of around 102 and it wasn't responding to attempts to reduce it.)
Need Prayer
Tuesday morning, Conan wasn't feeling great, but it didn't seem to be a big deal. Gretta took Henry to my parents house and she went to work. She asked them to check on Conan later in the day.
When they called and he didn't answer, they grew concerned and they went to the house. He was conscious, but not making sense when my parents and his Mom arrived. (We think he realized something was wrong and he called his Mom.)
He was admitted to the hospital and had a CT scan and a spinal tap last night. There was no sign of stroke, tumor regrowth or infection with those tests.
He is still mostly unresponsive, but he has spoken some. He was moving his arm and trying to sit up some this morning. They wanted to do an MRI, but decided he was moving too much for that and they didn't want to sedate him.
When they called and he didn't answer, they grew concerned and they went to the house. He was conscious, but not making sense when my parents and his Mom arrived. (We think he realized something was wrong and he called his Mom.)
He was admitted to the hospital and had a CT scan and a spinal tap last night. There was no sign of stroke, tumor regrowth or infection with those tests.
He is still mostly unresponsive, but he has spoken some. He was moving his arm and trying to sit up some this morning. They wanted to do an MRI, but decided he was moving too much for that and they didn't want to sedate him.
Thursday, February 16, 2012
Happy Valentine's Day
Another clean scan on Tuesday, the 14!!!!!!!
He will continue the avastin infusions bi-weekly. This is the stuff that suppresses blood vessel formation, and tumors need lots of blood vessels to feed them. Side effect: high blood pressure. So Conan is now on blood pressure meds. He also a big bad nosebleed a couple of weeks ago.
He also is continuing the temador for an undetermined length of time. Maybe as long as 2 years. This is the chemo, and the doc wants to be sure to kill any stray cancer that may be around. This causes nausea and the anti-nausea drug causes other issues, so more pills.
While everyone is thrilled there has been no regrowth, Conan was hoping to get off the monthly roller coaster that comes with the chemo dose. So give him your best smiles and remind him you're glad he is here!
He will continue the avastin infusions bi-weekly. This is the stuff that suppresses blood vessel formation, and tumors need lots of blood vessels to feed them. Side effect: high blood pressure. So Conan is now on blood pressure meds. He also a big bad nosebleed a couple of weeks ago.
He also is continuing the temador for an undetermined length of time. Maybe as long as 2 years. This is the chemo, and the doc wants to be sure to kill any stray cancer that may be around. This causes nausea and the anti-nausea drug causes other issues, so more pills.
While everyone is thrilled there has been no regrowth, Conan was hoping to get off the monthly roller coaster that comes with the chemo dose. So give him your best smiles and remind him you're glad he is here!
Subscribe to:
Posts (Atom)